How Labels Help and Harm Us

How Labels Help and Harm Us

For many years now I have been encouraging all of my members to look beyond their diagnoses and labels. Why? Because you are not your tinnitus, your menopause, your autism, your OCD, your migraine or your meniere’s etc… You are a whole human being and part of your experience may be explained and understood by a label or diagnosis, but certainly not ALL of it. You and your wellbeing, are so much more. People who become their diagnoses can become limited and stuck in their neural pathways too.

Their symptoms fire repeatedly and their lifestyle habits remain on repeat.

They are stuck in a harmful trap of over-identifying with a diagnostic label.

Yet, ignoring labels and diagnoses can be equally harmful.

Labels can bring a lot of support and reassurance to help us understand parts of our experience.

For example, you may learn which phase of “perimenopause” or “menopause” that you are in.

Yet, it is important to not be consumed by this identity.

So we are learning how to explore a diagnosis or label, to help us understand our body and stage of life — without being consumed by it.

It is a balancing act which is why I say: Hold all labels lightly.

For example, I recently experienced a flush of ‘depletion’ type body signals and many people casually said: “You’re in menopause, get used to it!” However, I am 41, and I am not there yet. Imagine what could happen to my life, if I believed them and I became a menopausal woman.

What if I started acting like a menopausal woman is stereotyped to be?

Imagine if I started complaining and blaming my body, my hormones, getting into a funk of body symptom patterns and just accepting it. There is danger in this.

Never let others give you a label without questioning it deeply.

I was also given the label “autistic”, but upon reflection and further research, this label really does not fit me. At first, I started to behave differently, as though I was trying to blend into the diagnosis.

Why? Language is powerful and it truly does shape us. But I noticed that this autism label did not in any way support, nourish or nurture me. I felt caged, limited, weaker and misunderstood.

I have a voracious social hunger (not the typical limited social battery), I do not experience the need for stimming or repetitive body movements (which is how autists discharge excess neural energy), and I don’t experience the difficulties of burnout that other autists report.

However I am highly sensitive and in that regard, part of the autism label is useful for me to learn about. So take and leave what works for you. Don’t become the label, because you are so much more than this.

This is what my research taught me about menopause.

Menopause typically occurs 40 years after a girl has her first bleed.

This means if your menarche is at age 12, your menopause is likely around age 52.

Perimenopause occurs roughly 6 years prior to menopause, so for this example, perimenopause is expected to begin around age 46. For me, I have a few more years yet to prepare for this stage of life.

These labels can be useful in navigating changes to bodily sensations, sleeping patterns, emotional regulation, ancestral “lineage” wounds and dietary needs. These are real physiological challenges. Each woman undergoes serious neural rewiring during menopause—she becomes more emotionally stable and eventually arrives at clear thinking within herself—if she makes it through the brain-fog and confusion of perimenopause.

In other words, the label can be useful to prepare for these changes and to be ready for them.

To understand that this time of life may call for more rest, solitude, emotional processing, slow cooked meals, tender conversations, soulful creativity and intimate connections. Hormones do not muck around and menopause is a huge rite of passage. Many of the “symptoms” or signs of perimenopause and menopause can include: migraine, headache, fatigue, exhaustion, tinnitus, dizziness, vertigo, pain, aches, emotional volatility and panic.

Sound familiar? In Sensing Ground, we talk about how to gracefully move through these life cycle stages and honour our changing needs. We don’t become perimenopausal, we become the next version of ourselves: stronger and wiser.

It is unhelpful to identify with the label perimenopausal or menopausal, then to isolate oneself into a community of other woman who also identify this way. It can lead to groupthink and a natural human tendency to ‘blame and complain’ together. There is stagnation rather than evolution. This keeps us stuck in our pain rather than learning, growing and evolving through the immense wisdom that is flushing through the body. These are tremendous opportunities to cleanse ourselves of the ancestral stories that do not belong to us. To empty our body of the “I am not enough” and “I am not worthy” ideas that riddle us all. Symptoms can be viewed as useful clues. These clues are telling us the beliefs and stories that we have absorbed over decades, and these stories are ready to go.

This is a time of excretion.

Out with the old ideas and beliefs, in with the new.

You consciously create your inner lanscape to build an interior life that is perfectly matched to suit you.

You wake up every day with the ability to access calm, confident clarity.

You learn to ride the waves of confusion gracefully.

You rid yourself of self-doubt and debilitating confusion. You rebuild your sanity and strength through paying quiet attention to your bodily sensations. This powerful rite of passage can be totally missed if a woman stays over-identified with the label, rather than looking beyond it and into her own wisdom. Every diagnosis is an opportunity to dive more deeply into your own wisdom. It is not a pathology to be fixed. It is an opportunity to learn the wisdom of your body.

Regardless of the diagnosis you receive, there is wisdom for you behind it.

Who are you becoming? How is this experience strengthening you? How are you learning to stand more steady and grounded in yourself? Once a woman completes her menopause rite of passage (rather than medicating or avoiding herself), she has superior emotional regulation skills because she has lived through the extreme oscillation of perimenopause and the wild ride of her hormones.

She has learned HOW to steady herself while living inside of a storm. But she can’t learn these skills if her bodily sensations are numbed, ignored, avoided, medicated or denied.

“I am all good, let’s get on with it”…. These are the words we whisper to ourselves when we deny our own sensitivity. The menopausal woman who knows herself deeply can say: “I need to pause, I need to slow down, in fact, I need to allow my soft tears to fall.” She cries rivers and enjoys the tenderness of it. She is true to herself. She understands her own rhythm and she can live in harmony with her own cadence. There is no push.

Why? Because she has journeyed through her darkness, entered her own mystery and overcome her symptoms with wisdom.

She knows herself and she is not her label or her diagnosis. She is not her vestibular migraine. She is not her menopause. She is not her tinnitus. These have been parts of her life experience and she has learned how to grow beyond them.

She becomes the woman that the world around her needs.

She is what I call Sensing Ground, moment to moment.

Some of it is patience.
Some of it is self-trust.
Some of it is learning the radical skills of genuine loving kindness and loving attention.
She has mastered the art of directing loving attention inwards towards all of her who she truly is.

This woman is not perimenopausal, menopausal or autistic.
She is herself, beyond all the labels.

And men, you have your own version of this too.

You are not your symptoms or labels either. A man who knows himself, is a natural magnetic leader who is good at listening and fostering the strengths of others. He lives to allow the voices of others to thrive, he creates safe spaces for the woman around him to become leaders.

He does not use his power ‘over’ others, he stands beside others and allows them to find their own power within themselves.
He becomes a sanctuary for life, not a force of destruction.

He is what I call Sensing Ground, moment to moment.

So, I invite you to hold all of your labels lightly. They are a small part of your full humanity. You are so much stronger than all of these pathologies. The question is: What is your body teaching you? Do you have the skills to listen and learn from your inner wisdom?

Or are you caught in a loop of avoiding yourself?

Join Rock Steady or Sensing Ground to begin your own journey within.

Become the master of your own interior world. Wake up with clarity. Live with loving kindness and loving attention. Break free from the old patterns that are feeding your symptoms. Comment to learn which program is best for you.

Rock Steady is designed for people with persistent symptoms.
Sensing Ground is designed for graduates of Rock Steady or for people who identify as highly sensitive (HSP), neurodivergent or spiritually/existentially challenged.

In both of my programs we meet in a circle multiple times a month to speak and listen from our hearts, as we navigate far beyond the labels.

I urge you to discover who you really are.

How I Overcame Dizziness Relapse

How I Overcame Dizziness Relapse

I became dizzy again! 

Spinning spells were returning to my daily life for a short while. It reminded me of my pregnant months where I experienced breathlessness and dizziness due to low iron levels. 

My body is my compass! 

Thank goodness I had all the skills and tools to navigate this quite quickly because as many of you know: vertigo and dizziness is debilitating if it persists. 

I had a couple bouts of tinnitus return too, but this has passed on and also resolved. 

Goodbye Symptoms and Hello Wisdom

Before I share with you what this NQR taught me… I want to let you know that I am opening up opportunities to work with me 1:1. 

I have seen many clients transform their lives and relax into a more gentle way of being through these 1:1 sessions. They are powerful, 90 minute sessions—just you, me and our combined intelligence working in unison. 

I now offer:
— a single session
— 3 X session package
— 3-month intensive with 9 X sessions
— 12 X sessions over a year for longer term support

Having 1:1 sessions is a chance to become more intimate with your bodily sensations and to learn what gifts they offer you.

You can expect to become more confident in how you locate your attention, orient yourself for meaningful connection and gain clarity amidst noise of life.

I will support you to make sense of your bodily sensations so that you can feel settled and at peace in yourself more often. (Yes, you read that right.)

I guide, support and witness your process while keeping you always in your personal power. 

My mission is to see your exquisite sensitivity and hidden strength come to the forefront of your awareness. 

I want you to feel confident with your body compass 24/7. 

You are the expert in you. 
(I am the expert in the sensory neural process.) 

If this interests you, please inquire now. I have very limited spaces.
Hit reply to get in touch with Mandy and apply. 

I look forward to supporting those of you who feel 1:1 sessions are aligned to you. 

So what did I learn from body compass with this recent NQR?

I had to get honest about my stage in life, my current cycle of “now”, and reflect that my body is tired, perhaps depleted. 

We humans, all of us, go through metaphoric birth, growth, bloom, harvest, decay, death, rebirth phases. Repeatedly. 

Over the last 6 years, I’ve birthed two physical babies, and I’ve written two books. It’s been a very creative ‘bloom’ season for my life cycle. 

And now, after years of breastfeeding and early years of parenting, while also keeping my energy directed towards my dear ROCK STEADY and Sending Ground community members… I have come to realise that my body is tired. 

And that is normal. After harvest, is a natural decay. Parts of myself will die out and be reborn in nourishing ways. This is all normal, healthy, human evolution. 

In this part of my cycle, I’m expected to feel lower energy, be inwards, pensive, perhaps slower and needing nourishment. I’m entering a time of dreaming and solitude, a time to reconnect with my inner nature and to the earth. 

I have got myself some supplements to support my physical body and reboot my blood levels which feels good. It’s interesting how we can just forget to nourish ourselves until the body says: “Hey! You forgot about me!”

I’ve reinvigorated my yoga practice which also feels very strengthening and stabilising. With young kids this has felt like something impossible—but now I have more time for yoga because it is a central part of my life. Yoga practice has been with me my entire adult life. 

Whenever I feel a NQR sensation anywhere, anytime, I direct my loving attention into that place and I allow a sense of Divinity to wash through me. My experience lightens and I feel deep connection to my heart. 

This dizzy feeling, the head spins and all that, have been a gift to redirect me back into my own path. 

I was over-giving of my life energy to others and I needed to pause, reflect, choose again and realign my choices. 

There is no right or wrong. 

At different months, we have varying capacity and resources. I needed to pause and be honest with myself. 

The key is to be attuned to your body as an accurate compass. Listen to its whispers. And adjust accordingly. 

The NQR sensations dissolve once your heed the wisdom of its message. The signal is no longer needed: you have heard its call. 

The dizzy spells quickly resolved for me. 
I had the tools and skills to attune to myself and take direct, effective action. 

There was a few moments of genuine fear. 
But the fear did not run the show. 

I am ROCK STEADY and I am Sensing Ground. 

It’s a beautiful feeling to shift from difficult NQR to strength and clarity. I feel powerful because I am powerful. 

I have the answers that I need, when I listen to the intelligence of my own body. 

Through this phase I consulted a lovely Traditional Chinese Medicine (TCM) practitioner and I had excellent guidance from someone with expertise in iron absorption. 

While I am not alone as I navigate the changes within my body, I do not give my power away to external experts either. They don’t fix me. Instead, they witness my evolution through this life cycle. 

You are the Leader on your own support team. Everyone else offers what they can, and nothing more. You are the one who gathers information (inner and outer) and you are the one who knows what is best and relevant for you. 

Self-knowledge is power.  

It’s rarely just a ‘physical’ fix. 

In my case, taking an iron supplement is unlikely to help. It’s a whole shift in my relationship to myself and how I spend my energy. 

How do you attune to your body compass?

Do you have questions about how you navigate the physical, mental, emotional, spiritual and relational parts of your life?

Do you have confidence in your skills?

Both of my ROCK STEADY and Sending Ground programs offer you oodles of guidance to explore these skills and tools. 

You become the expert in your own life once you understand your body as a highly sensitive compass. 

Inquire now for 1:1 sessions.

PS. Join my FREE CALL SERIES. The topic this month is “Why the body compass matters and the costs of the endless search for external fix.”

Is Tinnitus in the Brain or the Ears?

Is Tinnitus in the Brain or the Ears?

Question from a member of our community:

Is Tinnitus in the Brain or the Ears?

First up, I describe this in detail in chapter four of my book, Rock Steady, so I highly recommend you take a read.

And second up, it’s both. So tinnitus can come from the ear system, from the outer ear, middle ear, or inner ear where there’s mechanical movements and there’s neural signals being processed and sent along our auditory nerve through the brain stem and to the brain auditory processing areas, the auditory cortex. And anywhere between the inner ear and the brain, we can have perception and tinnitus sounds that come and go. So it’s really happening through the body and through the brain. Anywhere that the nerves are firing.

 

 

My tinnitus doesn’t sound like descriptions I’ve heard. Could it still be tinnitus?

My tinnitus doesn’t sound like descriptions I’ve heard. Could it still be tinnitus?

Question from a member of our community:

My tinnitus sounds like a computer in my head. It’s hard to describe. It doesn’t sound like the descriptions I’ve heard. Could this still be tinnitus? MRI shows nothing wrong or abnormal.

 

First of all, and I explain this in my book, Rock Steady, every person could describe the sounds in their body differently and it’s all still tinnitus. Tinnitus describes any sound that nobody else can perceive but you. It’s sound coming from within your body. It’s sound that only you hear. So any description is a good description and it’s a little bit like describing wine. 100 people could describe a wine in 100 different ways, even though it’s the same wine. The way you describe it is your way and it’s perfectly fine. I’ve actually heard that tinnitus sounds like a computer sounds so there are other people out there who would describe it that way too and it’s all tinnitus. So, that’s the first thing.

Yes, sometimes it is hard to describe and that’s okay. And I wouldn’t get bogged down in trying to describe it because probably really what you want to do is to celebrate the fact that they’ve found nothing wrong with your brain, that sounds like you’ve got medical clearance. That there’s nothing wrong with you. So that’s good. We want to take an exhale and relax into that information. That’s where we want to prioritize. The sound can come and go, you can reverse the neural emphasis on it. And if you follow the Rock Steady path, you can retrain the maps of your brain to return back to or to really rebuild a whole new normal where tinnitus is no longer central. So I think it’s important to acknowledge what you’re hearing and also acknowledge that it’s safe. It’s allowed to be there. And it’s great that you’ve got a normal MRI.

 

 

Can one safely participate in or attend concerts with tinnitus, hyperacusis, acoustic shock, or TTTS?

Can one safely participate in or attend concerts with tinnitus, hyperacusis, acoustic shock, or TTTS?

Question from a member of our community:

My question is can one safely participate in choir orchestra, go to concerts or movies when they have tinnitus, hyperacusis, acoustic shock, or tonic tensor tympani syndrome, also referred to as TTTS?

 

So my first answer is I absolutely recommend that you safely participate in choirs, in music, in concerts, in orchestras, especially when it’s coming from a place of joy and engagement and loving connecting to your communities and enjoying being surrounded in that music and that sound scape. So sensory enrichment and reintroducing sounds that bring us pleasure and joy is hugely therapeutic for anyone with tinnitus. And for those of you with acoustic shock, hyperacusis, or TTTS, I think it’s absolutely recommended for you too. It’s beautiful to allow yourself to enjoy being flooded by these beautiful sounds that you are choosing to participate in.

But what I would say is pace yourself. Give yourself options to perhaps attend for five or 10 minutes and leave again. What else could you do? Give yourself opt outs, maybe take breaks so you might not want to be there the whole time. You might want to step in and out. You might want to bring a friend with you and let them know, “Hey, I’m very sensitive to loud sounds or even normal sounds. It really hurts my ears. I get stressed.” So what I would say if you’re feeling the anxiety, particularly with acoustic shock, hyperacusis, and TTTS, but honestly this is really relevant for tinnitus folks too because there’s an anxiety component of caring so much about ourselves and our hearing health that we don’t want to make it worse.

So what I would say is be resourced, have your self soothing tools. If you’ve got the Rock Steady program, look through the tools that are provided there that help you ground, that help you reclaim your safety, that help you self regulate, that help you find your steadiness and your center and use those tools before you go to the choir or the concert or the movies, use them while you’re in the movie or in the choir or in the concert and know when you’re feeling like you’ve had enough. You don’t have to get to the point of overwhelm and you don’t have to stay there. You have agency and choice. This is your body. You choose how much exposure you enjoy and feel safe for you in that day. And so because we’re building up, we’re teaching the brain that, “Oh, choir is safe,” and we’re teaching the brain the movies are safe, we need to build that trust. The brain’s learning, the brain’s going, “Oh, I’m not sure about this. This could hurt me.”

So especially around your tension, any tension around the head, shoulders, and neck, you want to have some strategies to release that muscular tension. I actually went to the movies recently and, being an audiologist, I had my watch measuring the decibel readings and I was feeling particularly sensitive that day and I was like, “This is really loud.” So I measured the volume and it was way over safe hearing levels. The audiologist in me was so angry that they would expose public to such loud sounds and I actually did go to complain and say, “This is not safe volume levels, I’m measuring it.” And anyway, so I think there is a little bit of public education to happen. So sometimes back yourself. It may be too loud and it is dangerously too loud.

But what happened was I went back in, I asked them to turn it down and whether they did or not was not in my control, but I went back into the movie and I was using my strategies. I was sometimes closing my eyes just to relieve some of the sensory input to my brain. I was body scanning. I was noticing if there was nervous tension or anxiety building up and I was meeting that with kindness and resolving it in real time. So it’s a little bit of if you don’t feel up for it, it’s okay to avoid it. You don’t have to expose yourself aggressively. You pace what you feel ready for. It’s all about remembering to connect into pleasure and joy because that’s what’s going to teach the brain and the ears that those sound pathways are healthy. They’re safe. They’re fine. From a physiological point of view, we want the signals coming from the sound collection in the ears that travels to the brain, we want the brain to tick all of those off as safe, healthy, and enjoyable.

And what has been happening in the past is when we hear sounds, we’re associating it with pain and with tinnitus and with unwanted abnormal outcomes so the brain’s being vigilant and responding to it in more of a stressor way. So that’s what we’re doing is we’re teaching those sounds to come over into the brain as safe and pleasurable. And that could take time, it might be instant. Some of you will hear this, go straight to choir and just have fun. And for others of you, it will be a slow, incremental practice of learning to release that anxiety, self soothe, and re-expose your body and your ears and your brain, choose sounds in a really healthy way. And of course, I think as per the movie example, just note, if it feels too loud for you, it actually might be too loud for you. So just be really realistic and listen to your body because you know you best.

 

 

Why has my high-pitched tinnitus remained constant and steady regardless of positive changes I’ve made?

Why has my high-pitched tinnitus remained constant and steady regardless of positive changes I’ve made?

Question from a member of our community:

I’ve had high pitched tinnitus for three years now, and I’ve done a lot of changing, including changing my breathing, being more positive, being more mindful, going through times of joy, and more accepting of myself, yet through all of this, my tinnitus is so constant and steady. I know you’ve said it’s always changing, but mine doesn’t back off or lower in volume and it completely baffles me. I feel I’ve made such positive strides, but with no results and it’s very disheartening. Can you offer any insight?

So first of all, I want to say I feel like it’d be nice just to pause and celebrate where you are. And that really moves me directly into my response, which would be when we’re coming at things from a neuroplasticity point of view, it really is founded in non-judgment and meeting ourselves where we are bringing loving awareness to where we are. And if the tinnitus feels as though it’s not changing at all, which is honestly highly unlikely because it’s all about where our awareness is. If we think of our awareness as a torch in a dark room, I think saying that the tinnitus is unchanging and is constant and steady is like saying, “Well, the torch is not ever moving.” So if you learn how to move your conscious awareness around and start investigating your inner world and really getting in touch with your self head to toe and your feelings and your felt sense of the world, it will literally move allocation away from that tinnitus sound so the awareness is not so strongly pointed at the tinnitus sounds.

Therefore, just keeping it there and training yourself to get very curious and open and absorbed in other parts of you. Because there’s so much more to you than your tinnitus and the tinnitus is allowed to be there, absolutely. And we can bring a lot of loving awareness and loving kindness to supporting that and listening to that. But I think it’s also important to not get too bogged down and focused on whether it’s there or not. It’s there, okay. How can we honor it, acknowledge it, be loving toward it? So really remove that emotional loading of wanting to get rid of it and shift into navigating other parts of you. And the questions I would be asking is, “What brings you deep pleasure? What truly engages your attention and just so absorbs and immerses you that there’s no space for anything else?” And then you’ll begin to notice, “Oh, okay. So when I’m really focused on this conversation or when I’m really just loving the sense of sand against my toes, the tinnitus sound does change because more of my neural awareness is resource and allocated elsewhere over into that somatic sensory region where I’m feeling and sensing against my skin and that’s taking away that allotment over at the tinnitus areas of my brain.” So play with that and learn how to really move toward pleasure, joy, sensory enrichment.

And my second response would be just really notice if you’re being outcome focused, that somehow you want to change your tinnitus or you want to get rid of it. It’s there. It’s a part of you. It’s your body making sounds. It’s normal and healthy. You do not need to focus on it at all and trying to change it means you’re teaching the brain it’s important to you. Trying, putting any effort into the tinnitus is teaching the brain that you like it, you want it, you’re interested in it and is giving it more neural emphasis. So for example, if you’re changing your breathing for the purpose of changing your tinnitus, the motivation is keeping the tinnitus alive. If you’re trying to be more positive, whatever that means, so that you can try and change your tinnitus, again, A, viewing things as positive negative means you’re still coming from place of judgment, that things should be this way. So it’s not that things are positive or negative. Things just are as they are and we can learn to experience them and let life wash over us in a way that takes a much more allowing, we’re allowing, there’s an effortlessness of letting life wash over us however it comes and we’re not micromanaging the outcomes, we’re not premeditated about it.

And that’s essentially what mindfulness is. So some people use mindfulness in a way that I think is a bit skewed and is still aiming for an outcome, but true mindfulness means we’re unbiased, we’re nonjudgmental, and we’re completely open with a loving awareness and curiosity in the present moment. So if that means that tinnitus is there, that’s okay. It’s welcome. And if in the next moment the tinnitus is there, that’s okay. It’s welcome. But what else is there? My question would be, “How do we get mindful about other parts of you and how can you be really richly engaged and engrossed in learning about new parts of you?” Because perhaps if we’re used an analogy of doing a PhD, it almost sounds like maybe you’ve done a PhD in really focusing on your tinnitus and now it’s time to let that go and shift your awareness to deeply focus on other parts of you as a whole person.

So I hope I’ve answered your question. And I think part of… You’re definitely on the journey, I can see that in your question and so it’ll be really tweaking it to shift away from that focal point of tinnitus, which it sounds like it’s coming back to, “Well, it’s still there. It’s still there. It’s unchanging. It’s still there. I’m doing this, but it’s still there.” Well, what I would say to you is, A, read my book or, B, try my rock steady program if you haven’t already, because this question demonstrates to me that you’re just trying to get rid of it and that doesn’t work. That will keep the brain locked in firing the tinnitus signal because it’s all coming back to whether the tinnitus is there or whether it’s changing. And we need to really let go of that agenda and surrender, allow and have an effortless approach to experiencing life as it is. I hope that helps answer your question.