How Labels Help and Harm Us

How Labels Help and Harm Us

For many years now I have been encouraging all of my members to look beyond their diagnoses and labels. Why? Because you are not your tinnitus, your menopause, your autism, your OCD, your migraine or your meniere’s etc… You are a whole human being and part of your experience may be explained and understood by a label or diagnosis, but certainly not ALL of it. You and your wellbeing, are so much more. People who become their diagnoses can become limited and stuck in their neural pathways too.

Their symptoms fire repeatedly and their lifestyle habits remain on repeat.

They are stuck in a harmful trap of over-identifying with a diagnostic label.

Yet, ignoring labels and diagnoses can be equally harmful.

Labels can bring a lot of support and reassurance to help us understand parts of our experience.

For example, you may learn which phase of “perimenopause” or “menopause” that you are in.

Yet, it is important to not be consumed by this identity.

So we are learning how to explore a diagnosis or label, to help us understand our body and stage of life — without being consumed by it.

It is a balancing act which is why I say: Hold all labels lightly.

For example, I recently experienced a flush of ‘depletion’ type body signals and many people casually said: “You’re in menopause, get used to it!” However, I am 41, and I am not there yet. Imagine what could happen to my life, if I believed them and I became a menopausal woman.

What if I started acting like a menopausal woman is stereotyped to be?

Imagine if I started complaining and blaming my body, my hormones, getting into a funk of body symptom patterns and just accepting it. There is danger in this.

Never let others give you a label without questioning it deeply.

I was also given the label “autistic”, but upon reflection and further research, this label really does not fit me. At first, I started to behave differently, as though I was trying to blend into the diagnosis.

Why? Language is powerful and it truly does shape us. But I noticed that this autism label did not in any way support, nourish or nurture me. I felt caged, limited, weaker and misunderstood.

I have a voracious social hunger (not the typical limited social battery), I do not experience the need for stimming or repetitive body movements (which is how autists discharge excess neural energy), and I don’t experience the difficulties of burnout that other autists report.

However I am highly sensitive and in that regard, part of the autism label is useful for me to learn about. So take and leave what works for you. Don’t become the label, because you are so much more than this.

This is what my research taught me about menopause.

Menopause typically occurs 40 years after a girl has her first bleed.

This means if your menarche is at age 12, your menopause is likely around age 52.

Perimenopause occurs roughly 6 years prior to menopause, so for this example, perimenopause is expected to begin around age 46. For me, I have a few more years yet to prepare for this stage of life.

These labels can be useful in navigating changes to bodily sensations, sleeping patterns, emotional regulation, ancestral “lineage” wounds and dietary needs. These are real physiological challenges. Each woman undergoes serious neural rewiring during menopause—she becomes more emotionally stable and eventually arrives at clear thinking within herself—if she makes it through the brain-fog and confusion of perimenopause.

In other words, the label can be useful to prepare for these changes and to be ready for them.

To understand that this time of life may call for more rest, solitude, emotional processing, slow cooked meals, tender conversations, soulful creativity and intimate connections. Hormones do not muck around and menopause is a huge rite of passage. Many of the “symptoms” or signs of perimenopause and menopause can include: migraine, headache, fatigue, exhaustion, tinnitus, dizziness, vertigo, pain, aches, emotional volatility and panic.

Sound familiar? In Sensing Ground, we talk about how to gracefully move through these life cycle stages and honour our changing needs. We don’t become perimenopausal, we become the next version of ourselves: stronger and wiser.

It is unhelpful to identify with the label perimenopausal or menopausal, then to isolate oneself into a community of other woman who also identify this way. It can lead to groupthink and a natural human tendency to ‘blame and complain’ together. There is stagnation rather than evolution. This keeps us stuck in our pain rather than learning, growing and evolving through the immense wisdom that is flushing through the body. These are tremendous opportunities to cleanse ourselves of the ancestral stories that do not belong to us. To empty our body of the “I am not enough” and “I am not worthy” ideas that riddle us all. Symptoms can be viewed as useful clues. These clues are telling us the beliefs and stories that we have absorbed over decades, and these stories are ready to go.

This is a time of excretion.

Out with the old ideas and beliefs, in with the new.

You consciously create your inner lanscape to build an interior life that is perfectly matched to suit you.

You wake up every day with the ability to access calm, confident clarity.

You learn to ride the waves of confusion gracefully.

You rid yourself of self-doubt and debilitating confusion. You rebuild your sanity and strength through paying quiet attention to your bodily sensations. This powerful rite of passage can be totally missed if a woman stays over-identified with the label, rather than looking beyond it and into her own wisdom. Every diagnosis is an opportunity to dive more deeply into your own wisdom. It is not a pathology to be fixed. It is an opportunity to learn the wisdom of your body.

Regardless of the diagnosis you receive, there is wisdom for you behind it.

Who are you becoming? How is this experience strengthening you? How are you learning to stand more steady and grounded in yourself? Once a woman completes her menopause rite of passage (rather than medicating or avoiding herself), she has superior emotional regulation skills because she has lived through the extreme oscillation of perimenopause and the wild ride of her hormones.

She has learned HOW to steady herself while living inside of a storm. But she can’t learn these skills if her bodily sensations are numbed, ignored, avoided, medicated or denied.

“I am all good, let’s get on with it”…. These are the words we whisper to ourselves when we deny our own sensitivity. The menopausal woman who knows herself deeply can say: “I need to pause, I need to slow down, in fact, I need to allow my soft tears to fall.” She cries rivers and enjoys the tenderness of it. She is true to herself. She understands her own rhythm and she can live in harmony with her own cadence. There is no push.

Why? Because she has journeyed through her darkness, entered her own mystery and overcome her symptoms with wisdom.

She knows herself and she is not her label or her diagnosis. She is not her vestibular migraine. She is not her menopause. She is not her tinnitus. These have been parts of her life experience and she has learned how to grow beyond them.

She becomes the woman that the world around her needs.

She is what I call Sensing Ground, moment to moment.

Some of it is patience.
Some of it is self-trust.
Some of it is learning the radical skills of genuine loving kindness and loving attention.
She has mastered the art of directing loving attention inwards towards all of her who she truly is.

This woman is not perimenopausal, menopausal or autistic.
She is herself, beyond all the labels.

And men, you have your own version of this too.

You are not your symptoms or labels either. A man who knows himself, is a natural magnetic leader who is good at listening and fostering the strengths of others. He lives to allow the voices of others to thrive, he creates safe spaces for the woman around him to become leaders.

He does not use his power ‘over’ others, he stands beside others and allows them to find their own power within themselves.
He becomes a sanctuary for life, not a force of destruction.

He is what I call Sensing Ground, moment to moment.

So, I invite you to hold all of your labels lightly. They are a small part of your full humanity. You are so much stronger than all of these pathologies. The question is: What is your body teaching you? Do you have the skills to listen and learn from your inner wisdom?

Or are you caught in a loop of avoiding yourself?

Join Rock Steady or Sensing Ground to begin your own journey within.

Become the master of your own interior world. Wake up with clarity. Live with loving kindness and loving attention. Break free from the old patterns that are feeding your symptoms. Comment to learn which program is best for you.

Rock Steady is designed for people with persistent symptoms.
Sensing Ground is designed for graduates of Rock Steady or for people who identify as highly sensitive (HSP), neurodivergent or spiritually/existentially challenged.

In both of my programs we meet in a circle multiple times a month to speak and listen from our hearts, as we navigate far beyond the labels.

I urge you to discover who you really are.

How I Overcame Dizziness Relapse

How I Overcame Dizziness Relapse

I became dizzy again! 

Spinning spells were returning to my daily life for a short while. It reminded me of my pregnant months where I experienced breathlessness and dizziness due to low iron levels. 

My body is my compass! 

Thank goodness I had all the skills and tools to navigate this quite quickly because as many of you know: vertigo and dizziness is debilitating if it persists. 

I had a couple bouts of tinnitus return too, but this has passed on and also resolved. 

Goodbye Symptoms and Hello Wisdom

Before I share with you what this NQR taught me… I want to let you know that I am opening up opportunities to work with me 1:1. 

I have seen many clients transform their lives and relax into a more gentle way of being through these 1:1 sessions. They are powerful, 90 minute sessions—just you, me and our combined intelligence working in unison. 

I now offer:
— a single session
— 3 X session package
— 3-month intensive with 9 X sessions
— 12 X sessions over a year for longer term support

Having 1:1 sessions is a chance to become more intimate with your bodily sensations and to learn what gifts they offer you.

You can expect to become more confident in how you locate your attention, orient yourself for meaningful connection and gain clarity amidst noise of life.

I will support you to make sense of your bodily sensations so that you can feel settled and at peace in yourself more often. (Yes, you read that right.)

I guide, support and witness your process while keeping you always in your personal power. 

My mission is to see your exquisite sensitivity and hidden strength come to the forefront of your awareness. 

I want you to feel confident with your body compass 24/7. 

You are the expert in you. 
(I am the expert in the sensory neural process.) 

If this interests you, please inquire now. I have very limited spaces.
Hit reply to get in touch with Mandy and apply. 

I look forward to supporting those of you who feel 1:1 sessions are aligned to you. 

So what did I learn from body compass with this recent NQR?

I had to get honest about my stage in life, my current cycle of “now”, and reflect that my body is tired, perhaps depleted. 

We humans, all of us, go through metaphoric birth, growth, bloom, harvest, decay, death, rebirth phases. Repeatedly. 

Over the last 6 years, I’ve birthed two physical babies, and I’ve written two books. It’s been a very creative ‘bloom’ season for my life cycle. 

And now, after years of breastfeeding and early years of parenting, while also keeping my energy directed towards my dear ROCK STEADY and Sending Ground community members… I have come to realise that my body is tired. 

And that is normal. After harvest, is a natural decay. Parts of myself will die out and be reborn in nourishing ways. This is all normal, healthy, human evolution. 

In this part of my cycle, I’m expected to feel lower energy, be inwards, pensive, perhaps slower and needing nourishment. I’m entering a time of dreaming and solitude, a time to reconnect with my inner nature and to the earth. 

I have got myself some supplements to support my physical body and reboot my blood levels which feels good. It’s interesting how we can just forget to nourish ourselves until the body says: “Hey! You forgot about me!”

I’ve reinvigorated my yoga practice which also feels very strengthening and stabilising. With young kids this has felt like something impossible—but now I have more time for yoga because it is a central part of my life. Yoga practice has been with me my entire adult life. 

Whenever I feel a NQR sensation anywhere, anytime, I direct my loving attention into that place and I allow a sense of Divinity to wash through me. My experience lightens and I feel deep connection to my heart. 

This dizzy feeling, the head spins and all that, have been a gift to redirect me back into my own path. 

I was over-giving of my life energy to others and I needed to pause, reflect, choose again and realign my choices. 

There is no right or wrong. 

At different months, we have varying capacity and resources. I needed to pause and be honest with myself. 

The key is to be attuned to your body as an accurate compass. Listen to its whispers. And adjust accordingly. 

The NQR sensations dissolve once your heed the wisdom of its message. The signal is no longer needed: you have heard its call. 

The dizzy spells quickly resolved for me. 
I had the tools and skills to attune to myself and take direct, effective action. 

There was a few moments of genuine fear. 
But the fear did not run the show. 

I am ROCK STEADY and I am Sensing Ground. 

It’s a beautiful feeling to shift from difficult NQR to strength and clarity. I feel powerful because I am powerful. 

I have the answers that I need, when I listen to the intelligence of my own body. 

Through this phase I consulted a lovely Traditional Chinese Medicine (TCM) practitioner and I had excellent guidance from someone with expertise in iron absorption. 

While I am not alone as I navigate the changes within my body, I do not give my power away to external experts either. They don’t fix me. Instead, they witness my evolution through this life cycle. 

You are the Leader on your own support team. Everyone else offers what they can, and nothing more. You are the one who gathers information (inner and outer) and you are the one who knows what is best and relevant for you. 

Self-knowledge is power.  

It’s rarely just a ‘physical’ fix. 

In my case, taking an iron supplement is unlikely to help. It’s a whole shift in my relationship to myself and how I spend my energy. 

How do you attune to your body compass?

Do you have questions about how you navigate the physical, mental, emotional, spiritual and relational parts of your life?

Do you have confidence in your skills?

Both of my ROCK STEADY and Sending Ground programs offer you oodles of guidance to explore these skills and tools. 

You become the expert in your own life once you understand your body as a highly sensitive compass. 

Inquire now for 1:1 sessions.

PS. Join my FREE CALL SERIES. The topic this month is “Why the body compass matters and the costs of the endless search for external fix.”

If I feel that vestibular exercises aren’t helping or may be making my PPPD worse, should I continue?

If I feel that vestibular exercises aren’t helping or may be making my PPPD worse, should I continue?

Question from a member of our community:

It’s been 13 months and I have PPPD, but should I continue to do vestibular exercises? I don’t feel they’re helping and they may be even making it worse.

 

So PPPD is not a condition that generally thrives on or needs vestibular exercises. Most people with PPPD have incredible balance and normal balance function and the vestibular exercises can certainly be aggravating and not needed — not necessary. By all means, try them. But, if you’re not feeling benefit probably within about six weeks, I would happily encourage my clients to let that go.

But where PPPD can benefit from is quiet stillness and also the mental, emotional, spiritual exercises that are offered and the tools and supports that are offered in the Rock Steady program. So it’s not about repeating mechanical, physical, vestibular exercises anymore. It’s about teaching the brain how to find safety and how to self-regulate, how to co-regulate and how to repair any broken trust within the body. Because to a certain extent, the fight, flight, freeze nervous system dysregulation is happening when we feel the symptoms within our body. So the trigger can be coming from within us. So we have to repair that relationship within ourselves. So the mental, emotional, spiritual aspects will probably need a lot more attention and the vestibular exercises may be less so.

 

 

What are your opinions on diets such as the Medical Medium’s, that claim to have healing effects on the body?

What are your opinions on diets such as the Medical Medium’s, that claim to have healing effects on the body?

Question from a member of our community:

Hi, Joey, I’d love to know your opinion on diets, such as the Medical Medium’s, that claim to have healing effects on your body.

 

My response to this is you know your body better than anybody so I would be very hesitant to take any recommendations from anybody other than your body.

Deeply listen to your body’s intuitive call when it comes to food, maybe slow down and see if you can get an instinctive feel for what your body is wanting. What I would listen to, however, is general nourishment advice. I think it’s really helpful to try and eat a broad range of fresh fruit and vegetables of all different colors and textures. And I just like the idea of variety in general. So if you look for advice on nourishing your body and nourishing you as a whole person, I think that’s possibly got some weight to it and some value. And sure, research nourishing recipes. And notice I’m not saying healthy, because I think healthy is a very loaded word. It’s about nourishment, what nutrients and what nutritional value are you really putting into your body because your body does need nourishment.

So yeah, think about how you’re nourishing your body. And if you’ve got questions about nourishing the whole person, it’s got nothing to do with your tinnitus or vertigo or any diagnosis for that matter. It’s really about nourishing you and then intuitively listening to your body.

 

 

What advice do you have for runners in terms of head movements or for post-run dizziness?

What advice do you have for runners in terms of head movements or for post-run dizziness?

Question from a member of our community:

Any specific advice for runners in terms of head movements and also dizziness that sometimes comes at the end of a run?

 

So my first response to this question is it’s not really about running or any activity. Every single person will feel what they feel in any given moment and they’ll have to find a way to acknowledge and meet that and be with that and be real about it. Because if we’re falling into this trap of dismissing and pushing through and minimizing, we’re really just not attending to the body. We’re not being responsive and we’re not taking care of ourselves to the level that the body’s asking for. The body’s bringing these sensations up and it’s saying, “Hey, tune in. Attune to me. Listen to me. I need help regulating. I need your help.” So it doesn’t really matter whether you are running a flight of stairs, running a marathon, or even if you are practicing piano and you’re a concert pianist and you’re starting to get symptoms because you’re doing really long practice sessions and the body’s beginning to disregulate.

So it’s not about what you’re doing. I think it’s more about what you’re sensing and feeling and how you’re responding to that, how you’re supporting it. So my advice with regards to head movements and dizziness would be something along the lines of keep your head movements as natural as possible. Anytime we’re rigid or stiff, it just leads to so many other problems, aside from maladaptive dizziness strategies and potentially creating more of a vicious cycle, it can also lead to postural issues, neck, headache, migraine, you name it. So keeping your head movements and your shoulder movements and your neck positions as loose and relaxed and natural as possible.

And what I would say is when you’re out and about, look at what you want to look at, stabilize your vision, find things that please you. So because we’ve got this example of running, if we’re out on a run, rather than being freaked out and worried about dizziness, actually look for things on your run that bring you pleasure. Find ways to relax into the run, to soften your footfall, and to let your eyes naturally move. If you see a bird or you see a car or you see someone with a really nice jacket you like, allow yourself to have that natural flow and playfulness in your posture. So that would be number one is keep your head and neck movements as natural as possible and follow pleasure. Allow your gaze to go where it wants to go for the sake of it.

And the second piece would be anytime that you’re feeling dizziness, whether it’s after a run or after a piano practice or after love making, after a good giggle, it could just be that the nervous system has dysregulated a little bit, or it could be that there is a bit of a cluster and the resources within the brain and the body are very busy, you can think of it as traffic jams, and so there is a bit of temporary dizziness as the body is recalibrating and finding its equilibrium. It’s nothing to worry about. You don’t need to change it. You don’t need to rush it. I would probably move you in the direction of the module three home exercises. And that gives you some good tips and tools on how to be off balanced, be imbalanced, and re-find that steadiness and how to do that in a really structured, gentle, safe way, and make a practice of learning how to lean in toward dizziness and imbalance, but then also how to recenter and re-find balance.

 

 

Can you get PPPD and vertigo when you have broken sleep?

Can you get PPPD and vertigo when you have broken sleep?

Question from a member of our community:

Joey, can you get PPPD and vertigo when you have broken sleep?

 

My simple answer would be: yes. I don’t know if it’s a direct causal link, but certainly fatigue and being tired does lead to more active symptoms and it does disregulate the nervous system a bit when it’s commonly occurring. So I guess my response is: it doesn’t really matter what came first or what’s happening, I think, it’s just really healthy to perhaps invest some time and energy into nourishing and nurturing your sleeping patterns because the more rested we are, the more the nervous system can self-regulate and we can co-regulate with our loved ones, and we can begin to use neuroplasticity to build those new maps of finding steadiness.

So my two recommendations, if you’d like them, would be to be really graceful and gentle with yourself with regards to tiredness and fatigue. There is no shame. It’s not your fault. Lots of us lose sleep from time to time. And sometimes we cannot change or avoid that, especially if it’s with mothering young children, for example. So it’s okay to be tired, be really gentle and be aware of any shame spirals that are coming in to sort of aggravate an already tender time.

And secondly, if you’re in the rock steady program, try the sleep skills, try some of those body scanning tools that are aimed to replace sleep. So if we can’t force sleep and we can’t magically make sleep happen, what can we do as a sleep replacement and begin to use some of those tools and incorporate them, live by them and see if you can help reintroduce sleep, which is what I’m seeing in so many of my rock steady clients is they’re getting back a good night’s sleep and it’s no longer a problem anymore. So I think nurturing the tiredness and having skills and tools to replace sleep, and just trust that when you are ready, your body will bring back that beautiful sleeping pattern.